February 27th. 2012

I'm laying in the hospital bed.  That's all I can do at this point.  I'm on about 12  liters of oxygen which explains why I'm in the hospital because that level of O2 is hard to manage at home.  My electric Oxy condensor maxed out at 5 LPM and the small  portable tanks at about 5, so I only can get about 10 LPM total.  This level also severely limits my ability to get out of the house even for doctor appointments.  If anyone has any suggestions on how to solve this dilemma please let me know.

I'm finding that even though I have a lot of time on my hands, I don't  have much energy so I am not being too prolific on this blog.  However, I plan on posting as many resources and as much advice as I can.
 

Talk about a wake-up call!

In late July of 2011 I was diagnosed with IPF.  That is Idiopathic Pulmonary Fibrosis.   The more I learned about the disease the more depressed I became.  Talk about a slap in the face.  This little known disease is progressive, has no true cause, no cure, no treatment and is fatal.  Those diagnosed with IPF usually live from 6 months to a couple of years.  The only thing you can do is get a lung transplant.
Lung transplants are very rare and seem very complicated.  In my effort to find some info on this condition I was surprised to find rather little on the actual day to day challenge of living with this disease and even less on what's involved in the transplant and after care.  With this blog I hope to be able to impart any wisdom that I acquire on to anyone who is interested.
I hope that others will come here and share the knowledge and experiences they have with this horrible disease and ask questions that possible I can answer, or other readers.  God bless, Bob.